Hey have you guys ever heard of a rare lysosomal storage disease called mps 6? Well it is very rare and only about 4 in a million people have it. It starts out with storage of complex sugars in the joints of the body. As you get older your stature would be shorter than average. Your fingers start to curve and it can cause compression of the spinal cord. Eventually if untreated it leads to death. It is caused by the lack of an enzyme that breaks down complex sugar chains in the body. Currently today there is a replacement therapy that involves an infusion lasting around 4 hours. It does not cure it, instead it hopefully slows down the process of sugar storage if not halting it completely. This treatment currently would require treatment once a week for life. There is more than one type of Mps and not all have treatment options. These genetic storage diseases cause disability to walk, hear, see, and many more normal day activity.
Do you think that the United States/ the world puts enough money to researching cures for genetic diseases that basically end in death or a completely altered life style? Also do you think that modern day schools and other establishments do enough to accommodate these people in need? Do you know of any other rare diseases like these? If you do you should post them here!

Here is the link to the Mps society website if you wish to learn more.
Mpssociety website

Thanks for reading this post

i have heard of this genetic disease. one disease that is commonly known but not known as genetc is autism